Latest
News
July
3rd 2009
Chat
and Sail Day Now on again
More
Details Here
June
16th 2009
Chat
and Sail Day Cancelled
Apr
2nd 2009
Northern
Primary Care Genetics Website
More
Details Here
Mar
31st 2009
Swarkestone
4 Report
More
Details Here
Mar
31st 2009
Swarkestone
4 Photographs
More
Details Here
Mar
30th 2009
38
attend our latest Family Information Day
More
Details Here
Mar
14th 2009
21Kay
Appeal
More
Details Here
Mar
5th 2009
Counselling
Directory A new website providinga support network
of UK counsellors and psychotherapists
More
Details Here
Mar
2nd 2009
PolyPeople
FAP Support Group Details
Here
Mar
1st 2009
FAP
Conference MD Anderson Cancer Clinic Texas
Details
Here
Feb
22nd 2009
Map
for Swarkestone Sailing Club now on Family Day
Page
Details
Here
Jan
20th 2009
Programme
and Registration for Family Day 2009 now ready.
Details Here
Dec
17th 2008
Details
of Verona Presentation and Article. Details
Here
Oct
28th 2008
New page to the more technical
websites. Details
Here
Oct
27th 2008
Details of a Networking
Project involving FAPGene Details
Here
Oct
27th 2008
Feedback on our Chat Day
Details Here
Oct
17th 2008
A new website in the USA
for FAP Information Details
Here
Oct
10th 2008
We have just had accepted
our article on Support for FAP Patients by The
Rosa Gallo Foundation. Due to be published in
late Novemebr 2008 by Springer
Sept
12th 2008 -
Date set for 2009 Family
Day Details
Here
Sept
11th 2008 -
Launch of Euro Gen Guide
Website Details
Here
Aug
21st 2008 -
New Pages for FAP
Booklet Details Here
Aug
9th 2008 -
New Euro genetic Guide Website
Details Here
Aug
1st 2008 - New Artwork Project
- Are you interested? Details
Here
July
30th 2008 - Link to Bonnie
Wilsons Video Diary Details
Here
July
27th 2008 -
Latest Information on Informal
Chat and Activity Day October 25th at Swarkestone.
Details Here
July
27th 2008 -
St Mark's Information Day
2008 Details
Here
July
9th 2008 - New link to Yahoo
Support Group. Details
Here
June
14th 2008 - Insure and Go
Travel Insurance, Pre conditions, over 65's and
annual worldwide including USA Details
here
May
29th 2008 -
Chris and her daughter Sue have added their story
about how FAP brought them back together. Details
here
May
16th 2008 -
A new page with a link to Newsletters at The Huntsman
Cancer Institute Familial Colon Cancer Registry
Details Here
May
8th 2008 - An Informal Chat
Day has been arranged at Swarkestone for Saturday
October 25th. Details
Here
May
1st 2008 - Updated International
Links Page Details
Here
April
29th 2008 - New link to Rosa
Gallo Foundation in Verona Italy Details
Here
April
13th 2008 - New link to Opaldia
Newsletter. Details Here
April
4th 2008 - Full report on
2008 Family/Information Day available Details
Here
March
30th 2008 -Photographs of
Swarkestone 2008 Family Day Details
Here
January
4th 2008
- New International
Support Links Page FAP Support in Germany
December
5th 2007 - We have just received
permission to include details of a book entitled
FAP and Me for Kids. Details
here.
December
5th 2007 - Ever wondered what
the Camera
Pill looks like? Thanks to a friend that is
one that has made a 6 hour journey through his digestive
system.
November
8th 2007 - Mick saw an NHS
dentist in Melton Mowbray today who knew about the
dental problems associated with FAP/Gardners Syndrome.
August
13th 2007 - Details of a special
FAP edition of The Familial Cancer Journal are now
on the Research and Education
Menu
July
9th 2007 - A direct link to
a mothers
story about FAP at NHS The Telling Stories Website
June
14th 2007 - Trials
of the Alfa Capsules at St. Mark's are going
well but still interested in new patients for the
trial.
April
30th 2007 - New
on-line Insurance Surgery on Insurance Page
March
15th 2007 - An excellent article
by Natalie Murphy of The
Derby Evening Telegraph on John Roberts which
also promotes our Family/Information Day. This has
already led to another family coming along and over
30 are now expected. View
Article
January
27th 2007 - Cancerbackup have
released their updated booklet on Cancer Genetics.
Also they mention in the booklet that this website
is a useful tool for information, something we are
very pleased with to say the least.
November
25th 2006
- Insurance keeps croping up and for those with
known risks an interesting website is RPS
Group . From their website "At Risk Placement
Services (RPS) we offer an easy-to-use, on-line
service for securing life cover for 'non-standard'
customers".
November
9th 2006
-
Cardiff University report on MYH Gene where
it needs both parents to pass on the gene.
November
9th 2006 - Aspirin
and Polyps article from Cancer Research UK
November
9th 2006 - Crohns
and Colitis Gene identified by US and Canandian
experts.
October
30th 2006 - Edinburgh University
have reported on Genetic
Testing for the MLH1, MSH2 and MSH6 genes which
are linked to Bowel Cancer.
August
31st 2006 - Interesting website
at Point
Of Care Laboratories Ltd National Independent
Bowel Cancer Screening Programme. £17.98 for
a test. Have e mailed them to see if the tests pick
up problems with the small bowel and if so from
a stoma output. Just something that intrigued me.
April
5th 2006
- A radio
interview on Omega 3 Fatty Acids and Bowel Cancer
with Roger Leicester OBE.
January
24th 2006 - Gentetic
Interest Group response to Human Fertilization
and Embryology Authority (HFEA) consultation Choices
and Boundaries - Should people be able to select
embryos free from an inherited susceptibility to
cancer?
November
21st 2005 - New link received
from The Birmingham Genetic Centre, for Compiling
a Family History. Although from the USA could prove
useful. Link is My
Family Health Portrait