Family Talk Study University of Birmingham

About Us

We are an experienced and committed team of researchers from the University of Birmingham who have been funded to carry out a research study exploring communication within families about genetic conditions and genetic risk information. Our work has been approved by The Liverpool Paediatric Research Ethics Committee.

The Genetic Interest Group (GIG) and a team of lay advisor families including children, young people and their parents have been assisting and informing the development of The Family Talk Project and we are now recruiting participant families.

As part of the study we would like to interview families including parents, children and young people affected by Familial Adenomatous Polyposis.

We realise there are many sensitive issues involved and have developed the study to manage and address them, with the help of our lay advisor group and relevant health professionals.

We aim to recruit families who have been aware of their family member's diagnosis for at least a year and have appropriate support networks.