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Familial Adenomatous Polyposis
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FAPGene Technical Links

After three years we have decided to add this page of links to some more technical websites on FAP. We realise that these websites contain valuable information for patients with FAP hidden amongst more technical and medical jargon.

Although several conditions are mentioned it does not mean these will affect all those with FAP. Also some are extremely rare.

We are prohibited by copyright laws from using this information on our own pages but can provide a link to the website. These links will open in a new window.

Orphanet Journal of Rare Diseases

Website Link

PDF File on FAP

National Registry Denmark Website Link
The Desmoid Tumor Research Foundation USA Website Link
The Hereditary Colorectal Cancer Registry USA Website Link
FAP Patient Case History from Genetic Health USA Website Link
E Medicine Gardners Syndrome/FAP Website Link